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(not a U.S. government website)
Getting Started, Staying Involved: An EMSC Toolkit for Family Representatives (not a U.S. government website). Developed by the EMSC National Resource Center, this toolkit is designed to assist parents and caregivers in their efforts to support the EMSC Program at the national and state levels. The guide contains information about the history of the U.S. emergency medical services system. It provides background information about the establishment, current status, and future endeavors of the EMSC Program and its Family Advisory Network. It addresses the importance of EMSC performance measures and how family representatives contribute to the success of each measure. Most importantly, this guide provides tips one everything needed to help family representatives get started and stay involved in the planning and implementation of state EMSC activities. (Available Spring 2008)
Working with Families to Enhance Emergency Medical Services for Children (not a U.S. government website). Developed by emergency care professionals and families who have experienced emergency care first hand, this guide is intended to help state and local emergency medical services agencies, EMSC grantees, hospitals, and family advocates explore the concept of family-centered care and apply it to pediatric emergency medical services. Use it as a framework for facilitating discussion and collaboration. Practical information and tools for conducting internal family-centered assessments are also included. (2001)
(not a U.S. government website)
Through its website, the Institute for Family-centered Care provides a number of resources to support parents and caregivers on how to work in partnership with others to advance the interests of families as consumers of health care. Available materials include individual case studies and tip sheets for recruiting patients and families and for serving on task forces and other work groups. (2007)
(not a U.S. government website)
Family Voices, a national grassroots network that serves children and youth with special health care needs and their families, offers a variety of tools through its website to promote partnerships between families, health care professionals, and others. On-line resources include tools for collaboration and strategies for building community support on behalf of children with special health care needs. (2007)
(not a U.S. government website)
Guided by a mission to encourage parents to help other parents better serve the needs of disabled children and their families, the Pacer Center offers guidance on how to work effectively with health care leaders and others by providing resources for collaboration and technical assistance on community building activities. (2007)
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